Privacy, Ethics & Trust in Connected Healthcare

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Privacy, Ethics & Trust in Connected Healthcare

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Addressing Privacy and Ethics requirements in connected healthcare and IoT systems design and development is vital to develop trust in using IoT based systems in the healthcare domain. IoT based connected healthcare systems require an appreciation of both the ethico-legal milieu and the sociopolitical landscape.

This workshop will convene stakeholders from  healthcare providers, medical device manufacturers, research, patient advocates, regulators and payors involved in the design and development of connected health systems. Workshop participants will explore the latest technologies, challenges, and regulations regarding privacy, ethics and trust for connected health IoT systems, and make recommendations for the future. The learning outcomes and topics for  discussion will include but are not limited to:

  • Identifying data protection and privacy consideration when designing and developing new devices and connections to legacy systems and devices, to improve trust among people using IoT devices and systems, and trust in device to device connections.
  • Identification of the ethical issues that need to be addressed with connected health IoT.  E.g Individual rights; autonomy, privacy and confidentiality; ownership of the data;  necessity and proportionality; beneficence and nonmaleficence. How do we satisfy these ethical requirements in designing and developing connected health IoT solutions?
  • Identification of frameworks, standards and legal regulations related to privacy in connected health IoT based system.
  • Examples of good practices, lessons learned, successful products, projects, services, and pertinent stories related to connected healthcare privacy, ethics and trust.

Prepartory Pre-reads

Presented By

Agenda

11:00AM

Opening and Welcome Remarks

Maria Palombini, Director, IEEE SA Healthcare & Life Sciences Practice
Florence Hudson, Executive Director, Northeast Big Data Innovation Hub

11:15AM

Panel Session: Global Perspectives on Ethics, Trust and Privacy in Connected Healthcare

Moderator:
Maria Palombini, Director, IEEE SA Healthcare & Life Sciences Practice

Panelists:
Dr. Dipak Kalra, European Institute for Innovation through Health Data
Shaneel Pathak, CEO & Co-Founder, Zamplo
Dr. Deborah C. Peel, Founder & President, Patient Privacy Rights
Dr. Julia Stoyanovich, Assistant Professor, Department of Computer Science and Engineering at the Tandon School of Engineering, and the Center for Data Science, New York University
Dr. Jeannette Wing, Avanessians Director of the Data Science Institute and Professor of Computer Science at Columbia University

12:00PM

Concurrent Breakouts with Facilitators

Trust and Identity Technology Solutions

Facilitators:
Dr. Emily L. Spratt, Fellow, Columbia University
Mohd Anwar, North Carolina A&T State University

Privacy by Design

Facilitators:
Nada Philip, Kingston University London
Parthiv Shah, Cerner Corporation

Patient Informed Consent

Facilitators:
Dr. Hsun-Hsien Shane Chang, Director of Data Science, NovartisShaneel Pathak, CEO & Co-Founder, Zamplo

Ethical Considerations for Connected Healthcare

Facilitators:
Dr. Becky Inkster, Neuroscientist, The Lancet Digital Health, International Advisory Board Member
Dr. Forough Ghahramani, Associate Vice President for Research, Innovation, and Sponsored Programs, NJEdge

1:00PM Report Back — Concurrent Breakout Group Output Discussion
1:45PM Next Steps and Introduction to Workshop 3
2:00PM Workshop 2 Concludes

Speakers

Dr. Dipak Kalra

The European Institute for Innovation through Health Data

LinkedIn

Shaneel Pathak

Shaneel Pathak

CEO & Co-Founder, Zamplo

LinkedIn

Dr. Deborah C. Peel

Dr. Deborah C. Peel

Founder & President, Patient Privacy Rights

LinkedIn

Dr. Julia Stoyanovich

Assistant Professor, Department of Computer Science and Engineering at the Tandon School of Engineering, and the Center for Data Science, New York University

LinkedIn

Dr. Jeannette Wing

Dr. Jeannette Wing

Avanessians Director of the Data Science Institute and Professor of Computer Science at Columbia University

LinkedIn

Facilitators

Dr. Hsun-Hsien Shane Chang

Dr. Hsun-Hsien Shane Chang

Director of Data Science, Novartis

LinkedIn

Dr. Forough Ghahramani

Dr. Forough Ghahramani

Associate Vice President for Research, Innovation, and Sponsored Programs, NJEdge

LinkedIn

Dr. Becky Inkster

Dr. Becky Inkster

Neuroscientist, The Lancet Digital Health, International Advisory Board Member

LinkedIn

Dr. Emily L. Spratt

Dr. Emily L. Spratt

Fellow, Columbia University

LinkedIn

Mohd Anwar

North Carolina A&T State University

Nada Philip

Kingston University London

Parthiv Shah

Cerner Corporation

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Participants of the virtual workshop series can continue the conversations and bring up new ideas in the #global-connected-health-cybersecurity channel in the IEEE SA WAMIII Workspace on SLACK.

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If you are interested in presenting a case study, new idea, or facilitating a breakout for this workshop OR learn more about branding and awareness opportunities within this topical area, please write to Maria Palombini, Director, IEEE SA HLS Practice, [email protected].

Registration

Complete Your Free Registration

Participation in this workshop is open to experts from anywhere in the world who are engaged, committed and prepared to openly collaborate to identify and develop solutions, engage in idea exchange and move the needle forward on the challenges enabling security vulnerabilities in connected wireless clinical devices and connected healthcare systems.

Registration is free for the workshop series. Please complete the following form in order to secure your place for this exciting global series.

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